A Young Woman Raises Cystic Fibrosis Awareness In Brazil

28-year-old Verônica Stasiak Bednarczuk, founder of the NGO Unidos pela Vida – an organization in Brazil raising awareness for cystic fibrosis in the country. 

Last month, we introduced you to French filmmakers Gwenn Lainé and Gwendal Danguy Des Déserts, both quit their jobs to work on a documentary hoping to inspire the inner travelers in all of us. The film captures their journey around the world, interviewing ordinary people who have undergone important life changes.

As they traverse from South America to New Zealand then to Asia, they’re updating thoughts and whereabouts on their blog: The Gwens’ Chronicles. They’ve been uploading new episodes, giving fans a glimpse of their documentary. As they release each episode, Jetset Times will be right here sharing their heartening stories.

This month, the guys interviewed 28-year-old Verônica Stasiak Bednarczuk, founder of the NGO Unidos pela Vida – an organization in Brazil raising awareness for cystic fibrosis in the country. Verônica was diagnosed with cystic fibrosis at 23 years old, which is considered a late diagnosis. She realized that she didn’t have to go through such hardships if she had an earlier diagnosis and received the right treatment. Starting the organization was her attempt to change the pattern in Brazil.

In their blog, Lainé and Danguy Des Déserts wrote:

This episode was once again full of lessons for us and also a real challenge: we had to shoot and edit a full episode in a language (Portuguese) that neither of us speaks (huge thanks to Leandro Martin for his help translating from the Portuguese)…We hope that Verônica’s life story will inspire you as much as it inspired us. You can learn more about Verônica’s action and support her project through her website.

View the short clip above (put on English subtitles if you don’t understand Portuguese) and visit Unidos pela Vida to find out how you can help with the cause.

Wendy Hung

CEO, FOUNDER, EDITOR-IN-CHIEF

As the founder of Jetset Times, Wendy is an avid traveler and fluent in five languages. When she's not traveling, Wendy calls Paris and Taipei home. Her favorite countries so far from her travels have been: Bhutan, Iran, and Russia because they were all so different! St. Bart's was pretty amazing too (wink)!

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